We’ve been in Houston for a few days because Logan was scheduled for his 6 month post-transplant biopsy on Monday. This visit was probably more eventful than I care for, but I didn’t want to post and scare everyone for what would hopefully turn into nothing. Here’s what happened:
Sometime in the middle of Sunday night there was an emergency of some type with another child and the cath lab along with our doctors were busy. They were finishing up when we arrived at the hospital. The transplant team was scrambling to find someone to do the biopsy at 5am since we drove so far and only do these once per month. Eventually a doctor agreed to do it and everything went like planned.
*At 9am Logan was taken back to the OR.
*At 10:15 I was called and told that they were done and to sit in the consult room so this doctor could tell me how it went.
*At 11:30, and imagining every awful possibility,I finally went to the front desk and asked what was going on. Nobody knew, so they sent me back to the room and went to investigate.
*At 11:45 the doctor came in and told us that he took a bigger bite than intended out of Logan’s heart (Ummm, ooops?!) and he would need further monitoring to make sure no bleeding was happening but ohmygosh did you hear that Oklahoma is getting snow!? Yes, it was really said like that. After a few more questions…(Ummm, is he going to be ok? Don’t you realize that this is his NEW HEART and we’d really like for you not to injure it?!?!)…we went up to recovery.
*We were able to see Logan at noon and he was still sleeping. Ehcocardiogram was ordered for noon. I made a frantic call to our Transplant Coordinator. She told me not to worry until we know we’ve got a problem. Stats are stable, no emergency chest openings were being done and we just wait.
*At around 1pm Logan had an echo and waited for it to be read by the radiologist.
*In the meantime we witness one family lose their child and our friends (The Lopezs’) tell me they are being mediflighted to Houston with a potentially devestating issue.
*Mom and I agree that we will be making use of the hotel bar tonight.
*Waiting, waiting, waiting, waiting
*At 5pm we find out that the echo was clear and no damage was done. The doctor who did the biopsy shook my hand and said he’d see me next time. (Ummm, no you won’t! One strike and you’re out when caring for Logan!)
*Shortly after that we find out that the rejection score was 1R (great!) and we were released! YAY!
*Hotel bar’s margaritas weren’t strong enough and the 8 dollar chocolate cake thing I ordered was just a ding dong snack cake minus the cream filling. Everyone knows that the cream filling is the best part.
*zzzzzzzzzzzzzzzzzzzzzzzzzzzz……..
Maybe one trip can be uneventful? Geeeez……
I can't believe the doctor was that nonchalant about making a mistake with his new heart. I know you will be seeing a different doctor next time. Oh…and bring your own liquor next time and get some free mixers from the hotel lobby!
OH.MY.GOSH. That is nuts! How could they act like it's as important as the amount of snow Oklahoma is getting?!?! Good job controlling yourself and not punching him in the face. (I know it would have crossed my mind). I'm glad everything worked out in the end and Logan is doing well!
I'm a new follower. My son has Right Heart. He's 7 months old and will be having the Glenn in two weeks. We had the BT shunt (Left heart the first is the Norwood right?) at 10 days old. My mother inlaw says she doesn't want to know any details of Mason's procedures and operations but it's reasons like this that my mom and I want to know everything! Everyone talks about "mama bears" but that's with healthy babies… they can't even begin to understand the protection of heart moms and moms of kids with other health problems. Where is Logan statting at now with the transplant? Will his oxygen be at 100%?
-Carly
I go have a baby, come back and goodness have you been a busy girl. Was catching up, reading about you meeting the donor family. My daughter's name is Chloe. Such a wonderful thing. Made me cry though!